Q&A Sessions: Trigeminal Neuralgia
John Y.K. Lee, MD will be
answering your questions about Gamma
Knife radiosurgery. Click here to ask
your question.
Shelly asks:
My doctor recently diagnosed me with trigeminal
neuralgia based on my reported symptoms.
I had a MRI and CAT scan in 2005 when symptoms
first appeared and they were normal. The
symptoms disappeared and I have been in remission
for three years.
They are now back and much more intensed.
I have the burning sensation in the cheek
area, lips and the tip of my nose and
tongue. I have pain in the jaw even when
the burining has subsided. The burning
is very prevalent when I am in stressful
situations. Am I elegible for the Gamma
Knife radiosurgery?
Dr. Lee responds:
Patients with typical symptoms of trigeminal
neuralgia tend to respond well to Gamma
Knife radiosurgery. Those with atypical
symptoms tend to respond less to Gamma
Knife radiosurgery.
If you have any additional questions or
would like to schedule an appointment,
please call us at 800-789-PENN. You can
also request
an appointment online. |
Lisa asks:
I have had trigeminal
neuralgia for the past eight years or
so and have been on multiple medications
over the years and have never been pain free.
I have pain all of the time, with burning
and jolts that come along with it.
If you have pain all of the time is
it more difficult to treat with the Gamma
Knife than those that have the intermittent
pain? I have heard that the intermittent
pain responds better to surgery than
the chronic all the time pain.
Dr. Lee responds:
Patients with atypical features of trigeminal
neuralgia are generally less likely to
respond to any of the surgical treatments,
including microvascular decompression,
percutaneous glycerol rhizotomy, percutaneous
radiofrequency rhizotomy, percutaneous
balloon compression, and Gamma Knife
radiosurgery.
Nevertheless, it is important to be evaluated
by a neurosurgeon with experience in trigeminal
neuralgia. I have a special interest in
trigeminal neuralgia treatment and would
be happy to discuss your options. If you
would like to schedule an appointment,
please call us at 800-789-PENN. You can
also request
an appointment online. |
Louise asks:
I have suffered with atypical face pain for
14 years. The pain is a constant burn
that affects the lips, tongue, gums and
an ache that is on the left cheek area.
For a long time, Neurontin and Prozac
worked. It stopped two years ago. Since
then I was put on Lyrica and Cymbalta.
That too worked until now. I'm up to
Lyrica 150 three times daily, Xanax two
times, Cymbalta and Neurontin at bedtime.
I wake up every day in pain and have
no energy to fight back. Can you help?
Doctors say that surgery is not an option.
Dr. Lee responds:
Patients with atypical features of trigeminal
neuralgia are generally less likely
to respond to any of the surgical treatments,
including microvascular decompression,
percutaneous glycerol rhizotomy, percutaneous
radiofrequency rhizotomy, percutaneous
balloon compression, and Gamma Knife radiosurgery.
Nevertheless, it is important to be evaluated
by a neurosurgeon with experience in trigeminal
neuralgia. If you would like to schedule
an appointment, please call us at 800-789-PENN.
You can also request
an appointment online. |
Carter asks:
Recently I had a dental root canal
performed on an upper molar tooth/right
side. Immediately afterwards I started
to have excruciating pain on the right
side of my face, starting in the root canal
tooth and progressing upward into the right
upper sector of my brain. The pain feels
like some one has stuck an ice pick into
my brain or like a heavy electrical charge.
Sometimes the pain is like a roman candle
firework. The pain sparkles in my mouth
area then bursts of pain go off in the
upper right side of my brain. This second
burst of pain is the worst and can last
up to two to five minutes at a time and
then repeat itself.
I went to a dental specialist who, over
a two day period, did another root canal
and then extracted the tooth. The pain
has not gone away. I have subsequently
gone to a local emergency room three times
and last night the ER doctor diagnosed
my problem as being "facial trigeminal
neuralgia."
I have been taking neurontin 300 mg twice
daily and the ER doctor upped the dose
to 600 mg BID. The pain medications I have
been taking have no effect on the pain
regardless of the dosages. The pain is
so bad that it causes me to cry out in
agony and to scream and to become very
despondent, including having suicidal thoughts.
The pain weirdly seems to get worse at
night around 10 pm.
I can't go on living this way and it's
interfering with my work and my living
life. Would I be a good candidate for Gamma
Knife radiosurgery? Please advise me! Do
you pre-screen candidates by phone or in
person?
Dr. Lee responds:
Typically, I see patients with trigeminal
neuralgia after they have seen a neurologist.
These patients have either failed medical
management or they cannot tolerate the
side effects of medications. A consultation
with a neurologist who specializes in
treating trigeminal neuralgia is beneficial
because there are other medications,
such as Tegretol, which may be useful
in relieving the pain associated with
trigeminal neuralgia.
If medical management is not effective,
then neurosurgical options can be discussed.
Gamma Knife is one of the three surgical
procedures that I perform for patients
with trigeminal neuralgia. Microvascular
decompression is the preferred strategy
for young, healthy patients who want a
non-destructive procedure. Gamma Knife
is the least invasive procedure among the
options.
I would be happy to discuss all of the
neurosurgical options with you. Please
call 800-789-PENN to schedule an appointment.
You can also request
an appointment online. |
Patti asks:
I have had trigeminal
neuralgia for four years on the left
side of my face (section two, I believe
it is called). The MRI was
negative. I have been on Neurontin 3200
mg with no help, I was allergic to Tegretol,
and now I'm trying Lyrica and Cymbalta.
Baclofen was tried but turned me into a
zombie. Do you think I would be a good
candidate for Gamma Knife? The pictures
really scare me. I am in my 60's.
Dr. Lee responds:
Gamma Knife radiosurgery is effective
for patients with trigeminal neuralgia
who are not responding to medications
or who are having significant side
effects from medications.
The procedure itself is often associated
with a certain degree of anxiety beforehand,
but fortunately we can provide sedation
during all parts of the Gamma Knife procedure
so that patients can sleep through it.
We also provide one-to-one nursing so that
patients have a nurse with them at all
times throughout the day.
I would be happy to discuss all of the
neurosurgical options for trigeminal neuralgia,
including microvascular decompression,
glycerol rhizotomy, as well as radiosurgery.
Please call us at 800-789-PENN to schedule
an appointment. You can also request
an appointment online. |
Cindy asks:
I have a cavernous tumor on both sides.
I suffer from headaches and trigeminal
neuralgia. I had a pituitary tumor removed
5 yrs, ago. My surgeon said that it's usually
inoperable. Would I be a canidate for the
Gamma Knife?
Dr. Lee responds:
I would have to review your films,
but residual pituitary
adenoma can involve the cavernous sinus
bilaterally. In addition, the trigeminal
nerve resides in the cavernous sinus and
can thus cause symptoms. Fortunately, Gamma
Knife can be used in these cases.
If you have any additional questions or
would like to schedule an appointment,
please call us at 800-789-PENN. You can
also request
an appointment online. |
Robert asks:
I have been diagnosed with trigeminal
neuralgia. I had decompression surgery
which did not work and now I am considering
Gamma Knife. What are the side effects?
Dr. Lee responds:
The only side effect is really 5-10%
risk of facial numbness/sensory dysfunction.
This is usually quite well tolerated
and does not mean facial paralysis which
is virtually unheard of after Gamma Knife. |
Marilyn asks:
I have trigeminal
neuralgia. I have not responded
to medication and have an appointment
with my doctor to discuss my alternatives.
I also have severe COPD, pulmonary
fibrosis, bronchiectasis, and severe RA.
Would I still be a candidate for surgery
for TN?
Dr. Lee responds:
Although you have several important
comorbidities, Gamma Knife stereotactic
radiosurgery should be able to
be performed without too much
difficulty. |
Katie asks:
My 31 year-old husband was
recently diagnosed by our family doctor
with trigeminal
neuralgia. Would you recommend attempting
to control the pain with medication and
if the results are unsatisfactory to then
look into Gamma Knife radiation?
Dr. Lee responds:
Once a patient has failed medication
management for trigeminal neuralgia,
the surgical options range from open
craniotomy and microvascular decompression
to less invasive procedure such as the
Gamma Knife. Each procedure has its risks
and benefits and choice of therapy would
be tailored to suit the patient. |
Judy asks:
I would like to know if nearly 95 year-old
female, with tic
douloureux (that is causing severe
constant pain; even though on anti seizure
medications) would be candidate for cyber
knife? She was diagnosed two years ago,
had a short remission and now the pain
can not be controlled.
Dr. Lee responds:
Gamma Knife is one of the safest and
least invasive surgical procedures
for trigeminal
neuralgia. You would be a great
candidate for the Gamma Knife. Indeed,
Gamma Knife is the gold standard by
which all other radiosurgery tools
are compared. |
Hawk asks:
I had the trigeminal
nerve crushed in 2006. The pain is starting
to come back - will the Gamma Knife help
me.
Dr. Lee responds:
Gamma Knife is similar to other ablative
procedures for trigeminal neuralgia
such as percutaneous glycerol rhizotomy,
balloon compression, and radiofrequency
rhizotomy. It is, however, safer and
more reproducible than these other
procedures. |
Stephen asks:
My son is handicapped, but has been experiencing pain associated with trigeminal
neuralgia. Why would I consider Gamma Knife surgery for him when Cyber Knife
surgery is now available at two respectable hospitals in New Jersey? From what
I've read, the head frame that is used with Gamma Knife is very bothersome to
cope with.
Dr. Lee responds:
The precision and accuracy of the Gamma
Knife is unparalleled. Indeed, it is
the gold standard by which all other
radiation therapy devices are compared
when evaluating treatments for the
brain.
In addition, the frame is a necessary
part of the procedure whenever you are
delivering such high doses as is necessary
for the treatment of trigeminal neuralgia.
Because Gamma Knife was designed only
to treat brain disorders, it is the best
tool for the job. |
Mary asks:
I have trigeminal neuralgia, how can you
help me and what are the risks, and also
what are the long time benefits?
Dr. Lee responds:
Gamma Knife is one of the three surgical
procedures that I perform for patients
with trigeminal
neuralgia. Microvascular decompression
is the preferred strategy for young,
healthy patients who want a non-destructive
procedure. Gamma Knife is the least invasive
procedure among the options.
If you would like to schedule an appointment,
please call 1-800-789-PENN (7366) or request
an appointment online. |
Carol asks:
My symptoms are pain in my right eye along
with nasal pain on the right side of
my face. I have had the pain for about
5 years. I have finally been diagnosed
with Trigeminal Neuralgea. I can have
pain 100% of the day or 60 to 80% of
the day and night. Can the Gamma Knife
procedure help my pain?
Dr. Lee responds:
Gamma Knife is often a first option in patients
with trigeminal
neuralgia. I have a special interest
in trigeminal neuralgia and offer multiple
different surgical procedures for facial
pain, including microvascular decompression,
glycerol rhizotomy, Gamma Knife radiosurgery,
and peripheral nerve stimulation. Please
feel free to contact my office to arrange
a visit.
If you would like to schedule an appointment,
please call 1-800-789-PENN (7366) or request
an appointment online. |
Vicki asks:
I have MS and trigeminal neuralgia. Can the
Gamma Knife procedure help me?
Dr. Lee responds:
Gamma Knife has definitely been shown to
be useful for some patients with multiple
sclerosis-related trigeminal
neuralgia.
If you would like to schedule an appointment,
please call 1-800-789-PENN (7366) or request
an appointment online. |
Mercedes asks:
I have had trigeminal neuralgia for over
25 years. After experiencing varied degrees
of pain I finally found a combination
of medications that keep me relatively
pain free, with occasional spurts of
pain related episodes that last a few
weeks at a time, several times a day.
I am now 68 yrs. old and don't relish
the thought of being on medications for
another 25 yrs. Would I be a candidate
for Gamma Knife surgery?
Dr. Lee responds:
You would definitely be a candidate for the
Gamma Knife. I would be happy to speak
with you about the risks and benefits.
Please call 1-800-789-PENN (7366) to
schedule an appointment. You can also request
an appointment online. |
Martha asks:
My mother, who is 66 years old, has been
suffering from trigeminal neuralgia for
the last 12 years, and as of the middle
of October, she has had a reocurring
episode which had been intolerable to
say the least which has led to her decision
in trying to seek other alternatives,
e.g., surgical procedures.
Based on her
recent doctor's recommendations and our
own research, we are trying to research
more info on the Gamma Knife procuedure,
which seems to be the least intrusive.
Having read your profile and expertise,
I am desperately seeking for your expert
advice, and a further recommendation.
Dr. Lee responds:
Gamma Knife is an excellent way to manage trigeminal
neuralgia in a noninvasive way. If you
would like to schedule an appointment, please
call 1-800-789-PENN (7366). You can also request
an appointment online. |
Clare asks:
My grandmother is terribly claustrophobic,
but is having an increasingly difficult
time controlling her trigeminal neurolgia with medication. Will she be required
to have an MRI and/or a stress test?
Does the Penn Gamma Knife Center have
the facilities to accomodate her anxiety
about those tests if she is required
to undergo them?
Dr. Lee responds:
Fortunately, we can provide sedation during
all parts of the Gamma knife procedure
including the MRI scan. Patients who
are claustrophobic are generally given
enough medications so that they sleep
through the entire MRI and the Gamma
Knife procedure itself. In addition,
we provide one nurse per patient to help
them through this procedure.
Please call 1-800-789-PENN (7366) to schedule
an appointment. You can also request
an appointment online. |
Betty asks:
I read Joann's question. I also have trigeminal
neuralgia. I have had this for over a
year. I have been taking Gabapentin 800
mg. Initially it worked but now doesn't
seem to be very effective. The pain seem
more intense and now there is also a
burning sensation. I am an insulin dependent
diabetic. Does this make a difference?
If you feel that I would be a candidate
I would like to schedule something as
soon as possible. Thank you.
Dr. Lee responds:
Gamma Knife radiosurgery is effective for
patients with trigeminal
neuralgia who are not responding
to medications or who are having significant
side effects from medications. I would
be happy to discuss all of the neurosurgical
options, including microvascular decompression,
glycerol rhizotomy, as well as radiosurgery.
Please call 1-800-789-PENN (7366) to
schedule an appointment. You can also request
an appointment online. |
Joanne asks:
In reading your questions I am concerned
that I have atypical trigeminal neuralgia and thus Gamma Knife will not be effective.
I had assumed that my medication was
decreasing the frequency of the stabbing
pain and I was left with on and off pain
that made it difficult to eat, talk etc.
What do you think in regards to being
a good candidate for Gamma Knife surgery?
Dr. Lee responds:
Patients with atypical features of trigeminal
neuralgia are generally less likely to
respond to any of the surgical treatments,
including microvascular decompression, percutaneous
glycerol rhizotomy, percutaneous radiofrequency
rhizotomy, percutaneous balloon compression,
and Gamma Knife radiosurgery.
Nevertheless, it is important to be
evaluated by a neurosurgeon with experience
in trigeminal neuralgia. If you would
like to schedule an appointment, please
call 1-800-789-PENN (7366) or you can
also request
an appointment online. |
Kristy asks:
I have been diagnosed with post traumatic trigeminal
neuralgia. I have been told that Gamma
Knife radiosurgery is an option. How successful
are the ratings on this proceedure for TN? Dr. Lee responds:
Post traumatic facial pain is usally not
responsive to Gamma Knife which is another
kind of procedure which damages the nerve
to alleviate pain. |
Stormy asks:
My neurologist has suggested Gamma Knife
to treat my trigeminal neuralgia which
has stopped responding to medication.
What negative side effects could this
have? I'm 29 years old, a mother of three,
and very active. I have a high paced
job in sales and I'm worried it might
cause numbness and affect my speech.
Dr. Lee responds:
Gamma Knife performed appropriately has the
lowest rates of numbness compared to
any of the conventional ablative approaches
for the treatment of trigeminal
neuralgia. The only procedure which
has a lower rate of numbness is microvascular
decompression which is a major neurosurgical
procedure.
Gamma Knife radiosurgery should not
affect your speech at all. Balloon compression,
which is one of the other ablative approaches,
has been known to cause a higher rate
of jaw muscle weakness.
Overall, most patients prefer Gamma Knife
radiosurgery as a treatment for their trigeminal
neuralgia than any other approach. If you would like to schedule an appointment
or consultation, please call 1-800-789-PENN
(7366) or request
an appointment online. |
Lyn asks:
My mom is 80 and is having a lot of pain
from trigeminal neuralgia. She tried
Tegretol, but the side effects were bothersome.
She has had an MRI confirming the diagnosis.
Do you think she could benefit from Gamma
Knife radiosurgery? How long is the procedure,
and how much time from first visit until
the last follow up?
Dr. Lee responds:
Gamma Knife is a great option for patients
with trigeminal
neuralgia, especially if they are
older. The actual time in the Gamma Knife
is approximately 35 minutes. Side effects
are minimal. |
Sherry asks:
I have been diagnosed with trigeminal neuralgia for eight years now. Currently I am on
2700 mg of gabapentin daily. I have lost
faith in my doctors. My pain is definitely
brought on by constant stress in my life.
I have been suffering from severe sharp
attacks at my ear, where my jaw connects.
I cannot sleep, I find myself having
attack every 5 to 15 minutes. I work
with the public and it is very hard to
manage these attacks. My insurance is
about to end as my job is as well. I
need to know, what is the difference
between classic symptoms of TN and atypical
or post traumatic neuropathic pain? I
am not sure what I have.
Dr. Lee responds:
Typical trigeminal
neuralgia is episodic, lasts less than
2 minutes, and between episodes the patient
is pain-free. There is usually no numbness
or neurologic deficit associated with trigeminal
neuralgia. In contrast, atypical trigeminal
neuralgia is often associated with constant
burning pain. Some patients have both a constant,
background, burning pain and a more typical
episodic, lightning-like pain. Post-traumatic
neuropathic pain is also more constant and
burning in character. By definition, it comes
after a traumatic incident.
I would be happy to assist you. Please
call 1-800-789-PENN (7366) or you can
also request
an appointment online. |
Gina asks:
I have read about Gamma Knife surgery for
over a year now but am unsure it and
how it might apply to me. I was diagnosed
with trigeminal neuropathy and tic douloureux 3 years ago after seeing a neurologist
and having had an MRI along with other
testing. She told me that some places
were "doing Botox for this sort
of thing" but gave no other guidance.
I did not return.
A friend that is a doctor started me
on 400 mg of daily Tegretol in September
of 2005 only when the sensations no longer
seemed bearable. It immediately alleviated
the symptoms of facial numbness and tic
and the tugging and tightness around
my right eye but I eventually required
800 mg a day to control symptoms which
is were I remain.
When that no longer helped, my friend
suggested a blood test for herpes zoster which came back positive for my having
had the virus at one time although the
numbers were perfectly borderline for the
immediate present and I have never had
any lesions. I have experienced no actual
pain through this process except for the
really only occasional stabbing that is
felt in my right ear. She suggested 1200
mg of Zovirax a day which has helped but
only in taming the facial sensations. She
seems to feel that I need to see a neuro-ophthalmologist
at this point but I remain unsure from
what type of physician I should be seeking
answers and/or help. Can you direct me?
Dr. Lee responds:
There are many appropriate treatment options
for patients with facial pain. I would
be happy to see you in neurosurgical
consultation. If you would like to schedule
an appointment, please call 1-800-789-PENN
(7366) or you can also request
an appointment online. |
Sandy asks:
My mother had Gamma Knife for trigeminal
neuralgia, a month later she experienced
bleeding from the bladder. Her urologist
feels this bleeding may be related to
the Gamma Knife procedure. Is this possible?
Dr. Lee responds:
I have not heard of hematuria resulting from
a Gamma Knife procedure. It is most likely
unrelated, but of course, specifics about
each case would have to be examined carefully. |
Dale asks:
How effective is Gamma Knife for trigeminal
neuralgia in MS patients with severe
pain?
Dr. Lee responds:
Gamma Knife for trigeminal
neuralgia is generally considered about
as effective as any of the other ablative
approaches, eg. Glycerol rhizotomy, radiofrequency
ablation, balloon compression. Unfortunately,
results in patients with multiple sclerosis
are not as good, but there are still many
patients who can benefit. In fact, I have
treated several patients with MS-related
tic who have been pleased with the results. |
Shirley asks:
My question is regarding my husband. He has
TN and the pain is in his right side
along side of his nose. It has been treated
by medication and nothing seems to help.
He is 76 - has had open heart surgery
and had a stroke in 2001 which was caused
by plaque — not a brain hemorrhage.
He is in good health and if it were not
for the medication for the TN he takes
just an aspirin. The pain is becoming
intolerable. Is he a candidate for the
Gamma Knife?
Dr. Lee responds:
Gamma Knife is a minimally invasive option
for patients with trigeminal
neuralgia. Based on your description,
he is a great candidate for Gamma Knife.
If you would like to schedule an appointment,
call 1-800-789-PENN (7366) or you can
also request
an appointment online. |
Pepper asks:
I have atypical trigeminal neuralgia, pain
since 1995. Only a few occasions of classic
TN, one lasting 16 hours this month.
I have had pulsating pain near the right
temple since 1995, about 15 times per
day since 1995. Pain has always been
on the right side. Cannot sleep on the
right side of my head since 1995. I cannot
wear hats or hair barrettes very often.
In the early years, the pain was in jaw
and nose and temple (always on the right).
Now mostly right temple area. Am I a
candidate for Gamma Knife radiosurgery?
Is there an excellent clinic close to
me in Mississippi?
Dr. Lee responds:
Gamma Knife radiosurgery works best with
patients who have "classic" trigeminal
neuralgia which is defined as lancinating
pain in the distribution of one or more
of the branches of the trigeminal nerve.
The pain lasts less than two minutes
and is stereotypical in its presentation.
It is often associated with cutaneous
triggers such as lightly brushing the
face.
Gamma Knife radiosurgery does not work
as well with atypical trigeminal neuralgia
or post-traumatic neuropathic pain of
the face. |
Luv asks:
Ten years back at the age of 19 I suffered
from trigeminal neuralgia and underwent
Gamma Knife radiosurgery. Now at the
age of 29 the TN has reoccured. Kindly
suggest the best treatment. Can I undergo
another Gamma Knife?
Dr. Lee responds:
Trigeminal
neuralgia can be treated by multiple
different methods, including ablative
approaches such as Gamma Knife radiosurgery,
glycerol rhizotomy, radiofrequency
rhizotomy, and non-destructive approaches
such as microvascular decompression.
Repeat radiosurgery can be performed
but at a lower dose and higher risk
of numbness and bothersome facial sensations. |
Lucille asks:
I had Gamma Knife Surgery at in 2003 and
I'm starting to have a return of the
pain from TN. Can this surgery be performed
again?
Dr. Lee responds:
Repeat Gamma Knife radiosurgery for trigeminal
neuralgia can be performed a second time,
but you should be counseled as to the risks.
Doses are generally lowered for the second
procedure, and thus efficacy may potentially
be affected.
For more information or to schedule
an appointment at the Penn Gamma Knife
Center, please call 1-800-789-PENN (7366)
or you can also request
an appointment online. |
Tom asks:
I had surgery in 1992 for TN. I did not
get total relief from surgery. The pain
is coming back and is very painful. Can
the Gamma Knife work after already having
surgery?
Dr. Lee responds:
The Gamma knife or any ablative surgery can
be used to treat recurrent trigeminal
neuralgia pain after prior surgical
procedure. In fact, in the early days
of the Gamma Knife in the United States,
it was reserved for patients who had
recurrent pain after prior microvascular
decompression.
For more information or to schedule
an appointment at the Penn Gamma Knife
Center, please call 1-800-789-PENN (7366)
or you can also request
an appointment online. |
Mark asks:
I had Gamma Knife radiosurgery for trigeminal
neuralgia two years ago. Will the paresthesia
(numbness) ever go away?
Dr. Lee responds:
One of the common side effects of any ablative
procedure for trigeminal
neuralgia is numbness. This can be
seen with percutaneous glycerol rhizotomy,
percutaneous radiofrequency rhizotomy,
percutaneous balloon compression, and
gamma knife radiosurgery. In fact, the
rate of numbness appears to be the lowest
with Gamma Knife radiosurgery.
Usually, the numbness improves over
the period of a year; however, in a minority
of cases, the numbness persists as in
your case. It is definitely possible
that the numbness will continue to improve.
Unfortunately, we cannot predict which
patients will develop numbness. |
Shirley asks:
I have trigeminal neuralgia. The pain shoots
from the right upper gum to the sinus
cavity . Do you use the Gamma Knife on
the face or at the base of the trigem
at the brain stem? What are the risks?
Dr. Lee responds:
Trigeminal
neuralgia is a painful and debilitating
disease. There are many treatment options
for patients. Gamma Knife is a particularly
attractive option, because the surgical
risks are low. In general, we target
the Root Entry Zone of the trigeminal
nerve. We are targeting the nerve at
the "base of the trigeminal nerve" as
it exits the brainstem and enters the
trigeminal ganglion.
The major complications of Gamma
Knife for trigeminal neuralgia
are the same as other ablative procedures,
such as percutaneous glycerol rhizotomy,
percutaneous radiofrequency rhizotomy,
or percutaneous balloon compression.
The major risk is numbness of the face
and/or eye. We must constantly balance
the risk of numbness with the need
to achieve pain relief. Higher doses
seem to result in better cure rates,
but also seem to cause higher rates
of numbness. We will treat each patient
according to their individual condition. If you would like more information or
to schedule an appointment at the Penn
Gamma Knife Center, please call 1-800-789-PENN
(7366) or request
an appointment online. |
Rich asks:
A very dear friend of mine suffers from atypical
trigem. She has undergone several procedures
including most recently, a balloon style
technique to apparently damage the trigem
nerve. It seemed to slightly reduce the pain
for a few weeks, but it appears that it is
returning.
There have been glycerol/alcohol injections,
surgery behind the ear to wrap or insulate
the nerve -- yet nothing seems to help
this level ten stabbing pain in her face
and eye. It is four years now, and her
life has been brought to a grinding halt.
She is loaded with morphine constantly,
which causes nothing more than sleep
and stomach disorders. Is there anything
new on the medical horizons to effectively
reduce the suffering of atypical tgm?
She is 45 years old.
Dr. Lee responds:
Atypical trigeminal facial pain is a difficult
disorder to treat. Considering the number
of procedures that have been tried on
your friend, it is prudent not to try
another -- Gamma
Knife included.
Some treatments on the horizon include
motor cortex stimulation which involves
an implanted electrode as well as superficial
nerve stimulation which also involves
an implanted electrode. If you would like more information or
to schedule an appointment at the Penn
Gamma Knife Center, please call 1-800-789-PENN
(7366) or request
an appointment online. |
Bobbie asks:
My mother is 72 and has had facial pain for
20 some years. This all started by a
dentist removing all her bottom teeth
by cutting the molars in fours and than
removed them. Since then she has had
facial pains and we have been to many
places and they have not been able to
help her. She was at Penn and was given
neuriton for nerves and it worked for
a while and now we are back to the pain.
The pain is 24/7 and she has just about
had it. She also gets alot of sores and
if i don't get help for her soon, she
will lose it.
Dr. Lee responds:
Facial pain can be caused by a variety of
things. If her pain is more typical of trigeminal
neuralgia, eg. sharp, shooting, lancinating
pain with episodes that last less than
two minutes, and in between episodes
her pain is gone, or if her pain responded
well to Tegretol which is usually prescribed
by a neurologist, then she may be a candidate
for Gamma Knife radiosurgical ablation.
Please call 1-800-789-PENN (7366) to schedule
an appointment. You can also request
an appointment online. |
Bansi asks:
My dad is suffering from trigeminal neuralgia. He has shooting pain on the right side of cheek, lip and the area around , specially when chewing. He is a non smoker and 55 years old. His weight is 85kg and he is 6 feet tall. He is suffering from TN from the past 4 months. I want to know if Gamma Knife is a permanent solution to the problem of trigeminal neuralgia. I would like to have your email address where I can send you the detailed medical report. Please let me know the best solution to his problem.
Dr. Lee responds:
The most durable procedure for the relief of trigeminal neuralgia is microvascular decompression. This is an open surgical procedure that I recommend for many patients who are 65 years and younger.
Many patients, however, choose Gamma Knife radiosurgery because it is an outpatient procedure with few risks. I would be happy to review his case. |
Brad asks:
I have bells palsey and trigeminal
neralsia but nothing shows on MRI
nor blood tests, what next?
Dr. Lee responds:
I would be happy to see you in
consultation. |
Barbara asks:
Can you help me? I have a very dear
friend who has trigeminal
neuralgia and he is suffering.
He has a patch between the nerve
and the vein in his brain where
the nerve was curved because of
the vein and this patch was put
in in Jan 2005. It was good for
two and a half years and then the
pain appeared again, even stronger.
Can this Gamma Knife procedure
help him even if he has this patch?
The pain is all the time when he
drinks, eats, brushes his teeth,
talks, touches between the lips
and the nose only on the right
side. He is 44 years old. The pain
is like a knife which cuts the
cheek between the lips and the
eyes. Sometimes he feels the pain
inside his mouth above the palate.
The pain can last 15 or 30 seconds
and he can only wait for it to
stop. He is taking lyrica 3000
mg 2x a day and has no relief from
the pain.
Dr. Lee responds:
Gamma Knife can be an effective
procedure for patients with trigeminal
neuralgia even after they have
undergone the microvascular decompression
procedure. I consider it the
safest lesioning procedure with
efficacy similar to percutaneous
glycerol rhizotomy. Its major
downside is that the time to
onset of pain relief is a median
of one month. However, its benefits
last about the same as some of
the other percutaneous ablative
procedures. |
|
Gamma Knife and Leksell Gamma
Knife are U.S. federally registered trademarks
of Elekta Instrument S.A., Geneva, Switzerland.
Photo credits: Susan Pardys, Elekta, Inc.
|